Bettyjo is on some kind of antibiotic, and the infection seems to be under control. She will be seeing Dr. Willet next Friday, to discuss options.
I think the whole family is just........sort of numb right now. Everything we had been planning for the next year or so hinged on her getting better. And, now that is not so certain. I know, I know that nothing is for certain, even our next breaths, but when you are told by your Dr. that 95% of patients that had the first flap procedure (October 2007) have success, and of the remaining 5% , 90% of those having the radical reconstruction have success that means that only 1 in 200 are at the point Bettyjo is at.
Bettyjo and I are going shopping tonight for some material for her to make a curtain for the kitchen, she and Brenda are going to a movie tomorrow while Emily and I attend the Crew (MLS Soccer) home opener with tickets I won in a drawing at work.
Friday, March 28, 2008
Saturday, March 22, 2008
Bettyjo Update
We received the very worst news possible last night. Bettyjo's options are 1) a tube can be inserted past the hole so that saliva will not go down it, and "hopefully" it will heal. 2) they can take her stomach out attach it to her arm and attach it to he side and slowing stretch her stomach to make a new complete esophagus. 3) she can give up. They will put in a permanent feeding tube, and she will never eat or swallow again.
I am not going to ask for prayer at this time, because it seems that God will do what God will do, and I guess we will just have to accept it. Maybe prayer is really accidental anyway.
I am not going to ask for prayer at this time, because it seems that God will do what God will do, and I guess we will just have to accept it. Maybe prayer is really accidental anyway.
Wednesday, March 19, 2008
Bettyjo Update
Thanks to all of you reading the blog. And, to those of you leaving comments. I read them to Bettyjo and they are encouraging.
At the moment Bettyjo is in a lot of pain, from this last surgery, from the infection, from the previous surgeries, from the rod and screws in her neck and from the rheumatoid arthritis. She had an MRI last night but no one has been in to brief us on the results. I say no one, because both Dr. Willet and Dr. Baird (infectious disease) will use it to see multiple things. She is still getting IV antibiotics, and well...........we are just waiting. Not much fun, and getting very old.
At the moment Bettyjo is in a lot of pain, from this last surgery, from the infection, from the previous surgeries, from the rod and screws in her neck and from the rheumatoid arthritis. She had an MRI last night but no one has been in to brief us on the results. I say no one, because both Dr. Willet and Dr. Baird (infectious disease) will use it to see multiple things. She is still getting IV antibiotics, and well...........we are just waiting. Not much fun, and getting very old.
Sunday, March 16, 2008
Bettyjo Update
Bettyjo came out of surgery well. Dr. Willet said that she had a large puss sack behind her esophagus and a small amount on her voice box. He said that he really was not able to see anything for all the puss and blood that was coming out. In fact when the Anaesthesiologist pulled the breathing tube out it also had puss on it. Dr. Willet drained all the puss, flushed it out and then put in a Primrose drain. He will consult Dr. Alam either today or Monday, and will order another CT scan for Tuesday.
Bettyjo Update
Bettyjo's neck started to swell yesterday, and this morning it was very swollen. We took her to Riverside for a CT scan, and it revealed an abscess behind the esophagus most likely caused by the stitches dissolving too quickly. This has allowed some material to drain into the neck, causing the infection.
Dr. Willet will do surgery to drain the abscess, and will install a drain. She will be in the hospital for a few days.
Please pray for success of the surgery, and that the flap and the repaired esophagus will not suffer permanent damage from the infection.
Dr. Willet will do surgery to drain the abscess, and will install a drain. She will be in the hospital for a few days.
Please pray for success of the surgery, and that the flap and the repaired esophagus will not suffer permanent damage from the infection.
Tuesday, March 11, 2008
Bettyjo Update
Bettyjo went to her ENT in Columbus today. He removed the stitches, and was pleased with what Dr. Alam had done at the Cleveland Clinic. She will have a swallow test some time with in the next week or so. The troubling news was that they may have to stretch her esophagus to make it fully functional, in an out patient procedure.
Please pray that the swallow test goes well, and that the esophageal stretch will be successful, if it needs to be done at all.
Please pray that the swallow test goes well, and that the esophageal stretch will be successful, if it needs to be done at all.
Friday, March 7, 2008
Bettyjo Update
We made it home yesterday. The trip was very uneventful. The roads were in really good shape, even in Cleveland where there was about 8" to 10" of snow on the ground.
But.......the best news of all came today. Bettyjo was able to swallow a few sips of water! Yeah!!!
Bettyjo also got a call from Dr. Willet's office, to say the Dr. Alam had contacted them and they have discussed follow up care. Bettyjo will see Dr. Willet next week.
But.......the best news of all came today. Bettyjo was able to swallow a few sips of water! Yeah!!!
Bettyjo also got a call from Dr. Willet's office, to say the Dr. Alam had contacted them and they have discussed follow up care. Bettyjo will see Dr. Willet next week.
Subscribe to:
Posts (Atom)